After almost a year, we are taking our business elsewhere. We have a son who has Lennox Gastaut Syndrome, a terminal, whole brain seizure disorder. Our son is on 8 medications for seizure management and on 1 emergency medication should he go into a seizure for longer than 5 minutes or have cluster seizure that last over a minute and happen over 5 times in an hour Diastat has to be administered. We usually go through 2 doses of the emergency meds a month. Plus we have to make sure his school, after school program, our home and cars have his emergency medication at all times. And enough in case he does not react to the first dose. The emergency medication,(Diastat) is a rectal gel and believe me when I say no one who takes care of our child likes to administer it, but if we don’t, he will die. We have a 48 hour prescription of the Diastat at Walgreens on file, meaning if we use 2 tubes in 2 days, our insurance pays for a refill. Recently, my husband was picking up some of our son’s seizure medications and was confronted by the Pharmacist as to why we needed the diastat filled almost once a month. My husband was shocked and asked him if he realized that it was an emergency seizure medication. He wanted to say more but just could not believe a pharmacist who has been filling our son’s medications for so long could not tell that he needed this medication. We have been living with LGS for over 6 years now. Our son is also a non-verbal autistic. He is almost 17 years old and we have never had a problem with the Walgreens where we used to live or any other pharmacy filling our son’s medications on time to ensure his continued seizure control. For some reason, this pharmacist, Dale seems bound and determined to change that. They not only try to withhold the Diastat but our son’s Onfi as well. If our son misses one dose of any of his 8 medications, that could be fatal to him. The pharmacy in Seymour seems to just not care and refuses to talk to our son’s neurology nurse regarding the importance of filling his meds when requested and on time so that we don’t run out. The past couple of months have been like pulling teeth to get our son what he needs, when he needs it. As for the Onfi, that was because an idiot nurse called in a wrong 3 month supply in June causing us to go through it quicker because on March 20th his neurologist increased his daily dose from 25 mgs to 30 a day and when I called for a refill on it to Riley Hospital, they called in a 3 month dose of 25 mgs a day. I didn’t catch the mistake until we hit month 3 and were almost out. I called Rileys and asked them to call a new prescription into Walgreens and to tell them why, that there had been an error and even though we had seen the doctor 2 times since the Onfi increase, his file had never been updated. The nurse had to go back to the March 20, 2014 appointment to find the increase(I told her where to look). In the meantime, Walgreens gave us a 7 pill emergency amount until insurance would pay for the new refill. I have had to remind the several times in the past week that yes we need our son’s Onfi by Monday because he will be out come Tuesday morning. The pharmacist again said he didn’t understand WHY it wasn’t lasting us until the 30th. I reminded him that his pharmacy had given us a 7 pill emergency amount a month ago so of course we are going to run out a few days early.
DONOT use this pharmacy if you have life or death prescriptions that you need to have filled on time and with courtesy. We will be transferring our prescriptions to another pharmacy as soon as possible. First though, we intend to let our insurance company know how we have been treated by Dale the pharmacist. They have computers, the records are all there and yet they can’t put two and two together? That scares me because it involves my son’s life and neurological function.